What are the endometriosis lies and truths?
There are plenty of misconceptions and disagreements amongst the endo community. I decided to bring endometriosis lies and truths to light, in the hopes of helping women make more informed decisions about their bodies and health.
There are many endometriosis fallacies, but I am here to abolish them and correct them with facts about endometriosis.
Endometriosis isn’t just a bad period, it is in fact a real chronic condition that can be physically proven with laparoscopic surgery. Endometriosis pain does not collaborate with its extent but the placement. Endometriosis is not only caused by estrogen.
There are more myths and facts about endometriosis and this article is going to expose the most common of them.
- The facts in a nutshell.
- Endometriosis lies and truths.
- Who am I to know?
- Misconceptions about endometriosis.
- 15 endometriosis fallacies.
- 1. Endometriosis is just a bad period.
- 2. Only women with severe endometriosis experience pain.
- 3. Endometriosis is not a real disease.
- 4. Endometriosis is only caused by estrogen.
- 5. You can't have endometriosis if you've never had a baby.
- 6. Endometriosis is not hereditary.
- 7. Only white women get endometriosis.
- 8. Endometriosis is not a serious condition.
- 9. Endometriosis is cured by childbirth.
- 10. Endometriosis is cured by hysterectomy.
- 11. You can't have endometriosis if you've never had surgery.
- 12. All women with endometriosis are infertile.
- 13. You can't get pregnant if you have endometriosis.
- 14. Endometriosis is not related to cancer.
- 15. Endometriosis only affects the reproductive organs.
- Summarising endometriosis lies and truths.
The facts in a nutshell.
What can I say about the endometriosis lies and truths?
In short, the endometriosis lies are that it is only a bad period, it isn’t real, and it only affects women of childbearing age.
The endometriosis truths are that it is a real and chronic condition, it can be physically proven with laparoscopic surgery, the pain does not correlate with its extent, and it is caused by more than just estrogen.
The uninformed also say that endometriosis is just bad cramps. Most of the doctors who spread these rumors are either uneducated or totally ignorant.
The fact is that endometriosis can cause severe pain, often described as cramps that are much worse than usual. The pain can be so bad that it interferes with everyday activities.
So that’s in a nutshell. Now let’s make it more clear. Firstly, I will present to you the endometriosis fallacies. I will follow that with the endometriosis truths by correcting the lies with facts.
Before we get started though, if you want to learn more about endometriosis, I wrote an “Endo-Tool, Endometriosis for Men” e-Book.
You can get the 1st Chapter of the e-Book for FREE, and if you like it, you’ll get a Whopping 33% Discount on the Whole Book, plus discounts on other helpful tools. You have nothing to lose but a lot to gain!
The first chapter alone contains all the comprehensive medical knowledge about endometriosis, including:
- What is endometriosis?
- What are the symptoms?
- What causes endometriosis?
- What does endometriosis look like?
- What are the stages?
- What are the types?
- What is adenomyosis and how is it related to endometriosis?
- Why do some women develop severe endo and others don’t?
- Does endometriosis cause infertility?
- How is endometriosis diagnosed?
- Do types and stages affect the treatment?
- Recurrence of endometriosis after excision surgery.
FREE Chapter of “Endo-Tool”
Endometriosis e-Book for Men
Endometriosis lies and truths.
Endometriosis lies and truths have been a great topic of debate for many years. Unfortunately, the lies have been more prevalent and as a result, women have suffered immensely.
The endometriosis lies vs truths debate is one that needs to be put to rest once and for all. The lies need to be exposed and the truths need to be celebrated.
The endometriosis lies have been perpetuated by the medical community, the media, and society in general. The endometriosis truths have been hidden, suppressed, and ignored.
It’s time for that to change.
Who am I to know?
What do I know about endometriosis? I’m just a random guy, or am I..?
I’m a husband of a woman who has one of the worst types of it. M has stage IV deep infiltrating endometriosis. Being by her side for over 13 years, I’ve educated myself about endometriosis to the point where I can openly say this:
I’m WAY more educated about endometriosis than most of the general practitioners are. And even though am a bloke, I went to astonishing lengths to learn about this chronic illness.
Endometriosis is a diabolic, insidious chronic condition that nearly cost my wife’s life and divorce.
I cannot dispute the fact that my wife is the strongest woman I know and without her will to fight, she wouldn’t be where she is today, but I cannot ignore the fact that if it wasn’t for me, my wife would commit suicide on more than one occasion, or to our marriage would end in divorce.
The endometriosis divorce rate is very high. As many as 75% of them break, leaving vulnerable women unwanted, alone, and with no hope for the future.
My wife asked me to divorce her, she asked me on 5 separate occasions, but I stood by her. She also tried to commit suicide on more than two occasions. She self-harmed feeling like a burden to me, even though I just showed her love and compassion.
It hasn’t been easy, but I want to show you that it is possible to not only survive endometriosis but also to thrive in spite of it.
Misconceptions about endometriosis.
Endometriosis is a real and chronic condition. They call it an “invisible illness”, but the fact is that endometriosis can be physically proven with laparoscopic surgery. Not only it can be visible, but the biopsy can also prove the existence of the endometrial tissue.
This is probably the most important endometriosis truth of them all.
Endometriosis is also a real chronic condition, it is not just a bad period. The endometriosis pain does not correlate with how far it spreads, but with its location. To give you an example, here’s one of my wife’s…
She was diagnosed with endometriosis that existed inside of her for a long time – decades, not years. Her stage IV endometriosis spread to her fallopian tubes, bladder, bowel, and Pouch of Douglas (a small area in the female human body between the uterus and the rectum).
Her first laparoscopic surgery took nearly 5 hours to complete, it was so extensive. But she coped the best she could without hormones, and without painkillers.
She managed her extreme pain with a holistic approach, a low FODMAP diet, Pilates, avoidance of stress, pelvic physio, and relaxation methods such as deep breathing.
But time went by, and even though her endometriosis began to spread again before her second operation, my wife developed 3 endometriomas and one functional cyst. Four cysts in total. But the widely spread endometriosis lesions weren’t the issue, the problem was one of the cysts that attached itself to her womb.
Endometriosis can cause some parts to stick to each other at points called “adhesions”. This can be extremely painful. In my wife’s case, one of her endometriomas became glued to her uterus. Every movement caused her unbearable pain and a lower range of motion.
So to sum it up, it’s not the extent that causes the pain, it is the endometriosis location.
15 endometriosis fallacies.
- Endometriosis is just a bad period.
- Only women with severe endometriosis experience pain.
- Endometriosis is not a real disease.
- Endometriosis is only caused by estrogen.
- You can’t have endometriosis if you’ve never had a baby.
- Endometriosis is not hereditary.
- Only white women get endometriosis.
- Endometriosis is not a serious condition.
- Endometriosis is cured by childbirth.
- Endometriosis is cured by hysterectomy.
- You can’t have endometriosis if you’ve never had surgery.
- All women with endometriosis are infertile.
- You can’t get pregnant if you have endometriosis.
- Endometriosis is not related to cancer.
- Endometriosis only affects the reproductive organs.
1. Endometriosis is just a bad period.
Endometriosis is NOT just a bad period. This endometriosis fallacy is spread by uneducated and ignorant doctors.
Periods are normal and natural, but endometriosis is an abnormal and excessive growth of tissue outside the uterus. This is where it can cause severe pain, cramping, fatigue, heavy bleeding, and other symptoms.
Endometriosis is more than just a bad period, it is a complex and chronic condition that needs to be taken seriously.
2. Only women with severe endometriosis experience pain.
Endometriosis can cause mild to severe pain. It all depends on the individual woman and her unique circumstances.
I already touched upon that. Endometriosis pain doesn’t relate to how far it has spread, but rather to its location.
Endometriosis can be found in the ovaries, fallopian tubes, outer surfaces of the uterus, the lining of the pelvis, and other places in the body. But as long as it doesn’t involve surrounding nerves, the pain may not be as severe.
3. Endometriosis is not a real disease.
To say that endometriosis is not a real disease is just ignorant and harmful.
Endometriosis is a real and complex condition that affects millions of women around the world. It is a real chronic disease that affects approximately 1 in 10 women of reproductive age worldwide.
It may not be visible from the outside (although I would argue that with the visible endo-belly), but it is visible from the inside. Endometriosis surgery can easily prove that.
4. Endometriosis is only caused by estrogen.
While estrogen does play a role in the development of endometriosis, it is not the only factor. There are many other potential causes, including genetics and immune system abnormalities.
When it comes to genetic factors, the NSPR1 gene has been found to be associated with an increased risk of endometriosis. The NSPR1 gene encodes a protein called nociceptin, which is involved in pain signaling.
When it comes to immune factors, women with endometriosis have been found to have higher levels of inflammatory cytokines. This suggests that inflammation may play a role in the development of endometriosis.
The most commonly known factor is the presence of estrogen. This female hormone encourages the endometrial cells to grow and proliferate.
5. You can’t have endometriosis if you’ve never had a baby.
Endometriosis can occur in women of any age, including those who have never been pregnant.
My wife never got pregnant. Her endometriosis was present since her early adolescence. Most women live with hidden symptoms of endometriosis that only come to light when they get older.
When women hit puberty, at such early age, their hormonal environment changes and this can lead to the development of endometriosis, therefore, you can have endometriosis without ever having had a baby.
6. Endometriosis is not hereditary.
There is a strong genetic component to endometriosis, so it often runs in families. If your mother or sister has endometriosis, you are more likely to develop the condition as well.
However, my wife is the first woman in her family to be diagnosed with endometriosis.
But the genetic link has been backed up by studies that have found mutated genes in women with endometriosis. One study found that women with endometriosis were more likely to have a mutation in the ESR1 gene.
7. Only white women get endometriosis.
Are you for real?
It is like saying that only white women can have cancer. Who came up with such an idiotic statement?
Women of all races, ages, and sizes can develop endometriosis.
However, even though endometriosis affects women of all races and ethnicities, there is a higher incidence among white women, possibly due to genetic factors.
But again, to say that only white women get endometriosis is a fallacy.
8. Endometriosis is not a serious condition.
Endometriosis is a chronic disease that can have a significant impact on a woman’s quality of life. It can lead to pain, infertility, and other problems.
This diabolical condition impacts women not only physically, but also emotionally and mentally. It can lead to anxiety, depression, and other mental health issues.
Endometriosis also has an impact on social life, and work, and the financial strain is huge. Not only it impacts the woman, but also her partner, kids, and family.
In addition to all of the above, endometriosis impacts intimacy in the relationship and is the cause of the high endometriosis divorce rate. Self-harm and suicidal thoughts aren’t widely spoken of, but they do happen.
9. Endometriosis is cured by childbirth.
There are endometriosis lies and truths, but the lie that endometriosis is cured by childbirth is truly laughable.
Childbirth does not cure endometriosis, but it may improve symptoms temporarily. The symptoms will often return after the woman stops breastfeeding.
Just because endometriosis puts on a pause in growth, it doesn’t mean the existing lesions magically disappear, they are still there. The only difference is that they stop growing and remain the same size.
As soon as the pregnancy is over, the estrogen levels begin to spike up again, and that is followed by the growth of endometriosis.
10. Endometriosis is cured by hysterectomy.
A hysterectomy is the surgical removal of the uterus which doesn’t cure endometriosis, but it may improve symptoms. The symptoms will often return within a few years, even without estrogen therapy.
The reason that endometriosis grows outside the uterus, cutting it doesn’t cure endometriosis. This misconception isn’t even logical. Endometriosis has no cure, no amount of surgeries, pain killers, hormones, or pregnancy will cure endometriosis.
Unless it is adenomyosis, a hysterectomy will have no effect on the symptoms, let alone cure. As of today, there is no cure for endometriosis.
11. You can’t have endometriosis if you’ve never had surgery.
Endometriosis can occur without any previous surgical history. In fact, most women with endometriosis have never had surgery.
Diagnostic laparoscopic surgery is the only way to prove the presence of endometriosis, but just because a woman never went through surgery doesn’t mean that she has no endometriosis.
12. All women with endometriosis are infertile.
Not all women with endometriosis are infertile. That’s a fact.
It is estimated that 30-50% of women with endometriosis experience infertility. However, this does not mean that all women with endometriosis are infertile. There are many factors that contribute to fertility, and endometriosis is just one of them.
13. You can’t get pregnant if you have endometriosis.
The above point was self-explanatory. You can get pregnant with endometriosis.
While endometriosis can make it more difficult to conceive, it is still possible to get pregnant with the condition. In fact, many women with endometriosis go on to have healthy pregnancies and deliver healthy babies.
If there are issues with getting pregnant naturally, the IVF success rate is still relatively high in women with endometriosis.
14. Endometriosis is not related to cancer.
There is no evidence that endometriosis increases a woman’s risk of developing cancer. However, some studies have found that women with endometriosis are more likely to develop certain types of ovarian cancer.
For instance, one study found that women with endometriosis were twice as likely to develop clear cell ovarian cancer. This type of cancer is rare, and the overall risk is still low.
It has been estimated that cancer and endometriosis share some common risk factors, such as estrogen excess. However, more research is needed to confirm this link.
15. Endometriosis only affects the reproductive organs.
Nope! Endometriosis can cause pain and other symptoms in any area of the body, not just the reproductive organs.
The most common areas affected are the pelvis, lower back, and abdomen, but endometriosis can even develop in the brain, lungs, and other areas.
Summarising endometriosis lies and truths.
Endometriosis is a condition in which the endometrium-like tissue, similar to the layer of tissue that normally lines the inside of the uterus, grows outside of it.
Endometriosis most commonly involves the ovaries, fallopian tubes, and the tissue lining the pelvis. However, in rare cases, it may also involve other organs such as the intestines or lungs.
Endometriosis is often painful, especially during menstruation. It can also cause fertility problems.
There are many myths and misconceptions about endometriosis and dispelling some of the most common ones I introduced in this article.
The other endometriosis lies and truths I did not mention are that you can cure endometriosis with over-the-counter painkillers. You can treat it, but not cure it.
The fact is that endometriosis is a chronic condition that requires medical treatment. Over-the-counter painkillers may provide temporary relief, but they will not cure endometriosis. Nothing can.
Some men think that endometriosis is contagious. Not only it isn’t contagious and cannot be spread from one person to another, but men can also get endometriosis, although there were only a handful of proven examples.
If you think you may have endometriosis, it is important to see a doctor for diagnosis and treatment. Early diagnosis and treatment can help to improve symptoms and increase the chances of fertility.
I hope this helps, cheers!
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Hi, I’m Lucjan! The reason why I decided to create this blog was my beautiful wife, who experienced a lot of pain in life, but also the lack of information about endometriosis and fibromyalgia for men…